I have to make major life choices and that is hard to do.
I have to be strong very strong like I used to be.
I can do this………
Daddy I Wish….originally posted on my blog You Are Already Beautiful Parry Romberg Syndrome and Me My story by Cheryl Rick Klein
I am sharing this very personal story to support #rarediseaseday and #NORD
If you know someone suffering from a rare disease please reblog and share this post originally written in 2010 to #raiseawareness , #educate and #support others living with a #RareDisease
Dedicated with love to MANNY RICK my dad who died May 23, 2000
My father was the first to notice that something was very wrong with my face when a small cut by my chin didn’t heal. He wasted no time and took me to every medical expert to find out was was wrong.
He held my hand and told me that I was still beautiful and told me to remain strong. He told me he would never give up to make me well again.
He showed me what true beauty is. You won’t find it in any mirror.
My dad lost both his legs to complications having diabetes.
I told him what he told me so many years ago.
Be strong, you are a beautiful person.
And he was………
It was the day of my little sister’s wedding. I went over to my parent’s house
to get ready for the big event.
Suddenly, my mother, and my two sisters were gathering their gowns and were heading to the door. ” Where are you going ? I asked.”
We have to get to the temple early we are having our makeup done professionally. They didn’t make a appointment for me.
My face said it all. My dad who was watching the situation remarked “I told you it wasn’t right to not include Cheryl.”
I just stood speechless as they pushed past me and headed out the door.
I ran upstairs to my old room and cried. I didn’t understand why I was not included. I lost half my face to Parry romberg Syndrome and it took years of cosmetic procedures to erase the damage on the outside, however in that moment I knew nothing could erase the emotional scars I tried to hide from the world.
Could my own family be so shallow and actually be jealous I became too pretty???
My father called me to come downstairs.
He had tears in his eyes when he saw me. He opened his arms and hugged me tight. We cried together in silence.
Then he said the most beautiful words to me I will never forget.
” You don’t need a make-up artist you are so beautiful just the way you are.”
I loved my dad more than anyone in the world. He saw the pain I hid in a smile.
My father also was fighting for his life after he was diagnosed in his late 50’s with Diabetes.
Diabetes is also a auto-immune illness that ravaged my father’s body and eventually took both his legs.
I told him the same words he told me years ago. “You will always be beautiful to me daddy.” I hugged him tight and he cried like a baby in my arms.
Parry Romberg Syndrome became a official rare disease in 2001.
The Fur Pom Pom Mom
This cute furry Pom Pom keychain is #trending as the must have #accessory of 2016. They come in every color and price range depending on the brand and if the fur is real or faux. My daughter bought me a hot pink fox fur Pom from Saks for Hanukah. She told me a Pom keychain makes it is so easy to find your keys in a large handbag. Sounds like a item I really needed because I have really big handbags.
I thought about Adrian, a former #RHOB , who always said , “The bigger the bag the smaller the tush.”
I totally fell in love with Adrian’s #fashion logic! From that moment on I only have bought really large handbags!
I attached my keys to the hot pink Pom Pom and placed it in my handbag. That night I needed to get my asthma spray out of my bag and so I got out of bed in the dark half asleep and reached into my huge handbag and felt something furry and screamed! “There is a huge mouse in my bag.” I got my hand out of that bag so quickly and threw the bag across the bedroom. The bag landed upside down and the contents of my huge bag fell out and were now scattered all over my bedroom floor.
The first thing I saw was that hot pink furry Pom that practically glowed in the dark. I found my “mouse.” Yes, I just had a very embarrassing blonde moment !!!!!! #LOL !!!!!!
Maybe I should get a furry Pom Pom hat ? Hmmmmmm
#BlogHer , #Fashionista , #FashionBlogger , #trendy , #Style , #RePost , #MustHave , #Wordpress , #fur, #SocialMedia , #Blogging, #lol #pompom , #accessories ,#TooFunny , #HandBags , #TrueStory ,#StyleWatch , #twitter #ReBlog
POM POM faux fur keychain 18$ available at Vanilla Sky, Merrick NY
I never knew what “spirit week” was before I moved to the south shore of Long Island but I soon found out when my older daughter entered high school. Last week my older daughter who is a senior taught her freshman sister how to rock Spirit Week.
Monday was the first day of Spirit Week and the theme was “Pajama Day.” My daughter dressed up in a hooded “Care Bear” onesie. A few of her friends had the same idea. LOL!
Tuesday was renamed “Tiki Tuesday.” Everyone wore tropical type clothes that day. My daughter and her best friend dressed exactly the same. This is what she posted on Instagram.
On Wednesday the theme was “I Love the USA.” So as you could imagine everyone showed up wearing red white and blue outfits to show their patriotism. This is what my daughter wore and posted on Instagram. My daughter Nikki is the one in the red tutu!
Thursday was “Costume Day” of course my daughter and her friends decided to dress up as Disney Princesses! My daughter was Sleeping Beauty ! No shock there because my daughter loves to sleep and take long naps after school .
Friday was “homecoming Day” and the entire School dressed up wearing green “Cougar” teeshirts which is their school mascot .
Every high school should have “Spirit Week.” Showing pride for your school is a beautiful thing!
Yes this is the actual infamous Amityville Horror house located on 112 Ocean Drive where six members of the DeFeo family were shot to death execution style including both parents and four of their sleeping children on November 13, 1974 by 23 year old by the oldest son Ronnie DeFeo.
In 1977 the Lutz family bought the Amityville waterfront property on Ocean Drive and were quoted as saying they “could handle living in the house.” Many speculated the Lutz’s bought the Amityville house to capitalize on the tradgic deaths of the DeFeo Family. The Lutz’s claimed to experience demonic and supernatural events including foul odors and seeing “green slime ” were considered hoaxes by most local residents and paranormal experts. The Lutz’s moved out of the Amityville house a few months later. They eventually had a book deal and six movies were made based on the Amityville Horror house.
When I moved to the south shore I never ventured to Ocean Drive to check out the Amityville Horror House. I really had no interest to visit the site. One night my husband took me to a italian restaurant called “Mama’s” which we heard had really good italian food. It was located in Amityville. After a delicious dinner and the best baked clams I ever had in my life my husband made on the way home made a turn onto Ocean Drive. I was like no way are you taking me to the Amityville Horror House! He just laughed at me. Since I am a horror and paranormal junkie I was a little intriqued. It took it a little while to find the house since the new owners changed the actual house number address for privacy reasons but once I spotted the only house on Ocean Drive which even in the dark I could see the famous boathouse I knew I we found the house.
There were two cars in the driveway so apparently the house was occupied I noticed. Since I am intuitive, my husband asked me if I wanted to get out of the car and walk around. I declined his idea right away. The well groomed house with protective a black steel fence surrounding the front of the house was the new owner’s way of saying “No Tresspassing”
To be honest I really wanted to go home. I saw the the Amityville Horror House and it looked like every other well groomed house on Ocean Drive.
A few weeks later I was getting my hair colored and my colorist who lived in Amityville told me that that all locals knew the true story of why Ronnie DeFeo killed his entire family. She told me he was a crytal meth addict. “That is why he heard the voices telling him to kill his family.”
I felt so sad for the DeFeo family who died so senselessly . The next day I went back to the Amityville House and left six red roses on the front lawn. One for each of the six DeFeo family members who were brutally murdered . This wasn’t a fairytale. This was real.
I never will return to that house again……..
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