Category: Daddy’s little girls, heaven, losing a loved one

Today Is Rare Disease Day  2016 ….Daddy I Wish……

Daddy I Wish….originally posted on my blog You Are Already Beautiful Parry  Romberg Syndrome and Me My story by Cheryl Rick Klein 

I am sharing this very personal story to support #rarediseaseday and #NORD 

If you know someone suffering from a rare disease please reblog and share this post originally written in 2010 to #raiseawareness , #educate and #support others living with a #RareDisease 

  

It has beem 16 years since you left and yes daddy I am still fighting to survive and won’t give up. 
  

Dedicated with love to MANNY RICK my dad who died May 23, 2000

My father was the first to notice that something was very wrong with my face when a small cut by my chin didn’t heal. He wasted no time and took me to every medical expert to find out was was wrong.

He held my hand and told me that I was still beautiful and told me to remain strong. He told me he would never give up to make me well again.

He showed me what true beauty is. You won’t find it in any mirror.
My dad lost both his legs to complications having diabetes.

I told him what he told me so many years ago.

Be strong, you are a beautiful person.

And he was………

It was the day of my little sister’s wedding. I went over to my parent’s house

to get ready for the big event.

Suddenly, my mother, and my two sisters were gathering their gowns and were heading to the door. ” Where are you going ? I asked.”

We have to get to the temple early we are having our makeup done professionally. They didn’t make a appointment for me.

My face said it all. My dad who was watching the situation remarked “I told you it wasn’t right to not include Cheryl.”

I just stood speechless as they pushed past me and headed out the door.

I ran upstairs to my old room and cried. I didn’t understand why I was not included. I lost half my face to Parry romberg Syndrome and it took years of cosmetic procedures to erase the damage on the outside, however in that moment I knew nothing could erase the emotional scars I tried to hide from the world. 

Could my own family be so shallow and actually be jealous I became too pretty???

My father called me to come downstairs.

He had tears in his eyes when he saw me. He opened his arms and hugged me tight. We cried together in silence. 

Then he said the most beautiful words to me I will never forget.

” You don’t need a make-up artist you are so beautiful just the way you are.”

I loved my dad more than anyone in the world. He saw the pain I hid in a smile.

My father also was fighting for his life after he was diagnosed in his late 50’s with Diabetes.

Diabetes is also a auto-immune illness that ravaged my father’s body and eventually took both his legs. 

I told him the same words he told me years ago. “You will always be beautiful to me daddy.” I hugged him tight and he cried like a baby in my arms. 
Parry Romberg Syndrome became a official rare disease in 2001.

Sadly my dad never knew I was finally diagnosed, he died just one year before.
   
  

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I Was Born On Election Day

My fairytale began was I was born on November 5 which that year landed on the first Tuesday of November which was also Election Day. My poor mom was in labor without any meds for 14 long hours. At one point my grandfather who was so upset at hearing his daughter’s labor screams echoing through the entire hospital floor, grabbed my dad and yelled “What did you do to my daughter!” LOL!!!!!

    At 5:30 I finally was born and my mother “The Queen,” who was so exhausted took one look at her newborn princess, and then  banished me to the hospital nursery! 

         

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            Even my dad was a little mad I was born on Election Day because he didn’t even get to a chance to vote. Did it really matter? he was the “King” afterall! 

       

 

The Princess Who Drank Too Much

  My older sister has had a long history with alcholism. I tried to help her with her problem but I simply couldn’t get through to her. She denied her problem and I continued in my late teens driving her to several bars the night after a major binge because she was so drunk the night before she didn’t remember where she left her car. At least she somehow got home safely and didn’t get behind the wheel. 

 
     It was only a matter of time before her luck would run out and it did.

      I owned a clothing boutigue in Roslyn and it grossed over a million dollars in sales the first year I opened the store at the young age of 23. Since my store was so successful my older sister left her teaching job and joined my staff. I was against the whole idea but had no choice since my mom was the president of my corporation. 

     It started out fine for the first few weeks. Then I noticed my sister was slurring her words when she spoke to customers every now and then.  The problem esculated and my manager Jody who worked with my sister on my days off and she told me that my sister was getting too out of control and the customers were starting to notice.

      One rainy night jody offered to drive my sister home because she was extemely drunk and could barely walk. Of course my sister told her she was fine and to mind her own business. 

       On the 2 mile ride to our house her car skidded and she hit a telephone pole. Me being newly married got the call from my frantic parents who told me to meet them at the hospital. The first things I saw when I found my sister’s room was that she had a bloody lip and to my horror was hancuffed to the hospital bed. My sister motioned me to come to her and whispered to me to take her handbag out of the room. 

    As I passed my father who was crying to the police officers who happened to know my family because our house alarm that was connected to the police station was always going off. He was begging them not to take her to jail that night after the plastic surgeon treated her lip. 

     My mom most of noticed how I was trying to pass the police holding my sister’s large handbag and she quickly joined me when I managed to sneak it out of the room. She followed me to the ladies room and we found in her bag a half full bottle of vodka which we opened and poured the rest down the drain. Then we saw a large trash can and tried to bury the huge bottle under hundreds of paper towels we pulled from the dispenser. 

      I felt like I was aiding a felon but family love was always unconditional in my life and me and my mom just had to take care of my sister even if meant hiding the evidence. 

       My father managed to save my sister from going to jail that night and took her home .  She had to appear in court a few days later and since it was her first offense they pleaded her case down to driving while impaired.

         I on the otherhand was so traumatized by the experience from that night on if I have more than obe drink I will not get behind the wheel. 

    Unfortunately my sister didn’t learn from that night and got 2 more DWI’s s and even lost her teaching license. 

     Do not drink and drive!!!!!!!!!!