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Today Is Rare Disease Day  2016 ….Daddy I Wish……

Daddy I Wish….originally posted on my blog You Are Already Beautiful Parry  Romberg Syndrome and Me My story by Cheryl Rick Klein 

I am sharing this very personal story to support #rarediseaseday and #NORD 

If you know someone suffering from a rare disease please reblog and share this post originally written in 2010 to #raiseawareness , #educate and #support others living with a #RareDisease 

  

It has beem 16 years since you left and yes daddy I am still fighting to survive and won’t give up. 
  

Dedicated with love to MANNY RICK my dad who died May 23, 2000

My father was the first to notice that something was very wrong with my face when a small cut by my chin didn’t heal. He wasted no time and took me to every medical expert to find out was was wrong.

He held my hand and told me that I was still beautiful and told me to remain strong. He told me he would never give up to make me well again.

He showed me what true beauty is. You won’t find it in any mirror.
My dad lost both his legs to complications having diabetes.

I told him what he told me so many years ago.

Be strong, you are a beautiful person.

And he was………

It was the day of my little sister’s wedding. I went over to my parent’s house

to get ready for the big event.

Suddenly, my mother, and my two sisters were gathering their gowns and were heading to the door. ” Where are you going ? I asked.”

We have to get to the temple early we are having our makeup done professionally. They didn’t make a appointment for me.

My face said it all. My dad who was watching the situation remarked “I told you it wasn’t right to not include Cheryl.”

I just stood speechless as they pushed past me and headed out the door.

I ran upstairs to my old room and cried. I didn’t understand why I was not included. I lost half my face to Parry romberg Syndrome and it took years of cosmetic procedures to erase the damage on the outside, however in that moment I knew nothing could erase the emotional scars I tried to hide from the world. 

Could my own family be so shallow and actually be jealous I became too pretty???

My father called me to come downstairs.

He had tears in his eyes when he saw me. He opened his arms and hugged me tight. We cried together in silence. 

Then he said the most beautiful words to me I will never forget.

” You don’t need a make-up artist you are so beautiful just the way you are.”

I loved my dad more than anyone in the world. He saw the pain I hid in a smile.

My father also was fighting for his life after he was diagnosed in his late 50’s with Diabetes.

Diabetes is also a auto-immune illness that ravaged my father’s body and eventually took both his legs. 

I told him the same words he told me years ago. “You will always be beautiful to me daddy.” I hugged him tight and he cried like a baby in my arms. 
Parry Romberg Syndrome became a official rare disease in 2001.

Sadly my dad never knew I was finally diagnosed, he died just one year before.
   
  

Is A Voodoo Doll Like A Person So You Can ….. Hurt Somebody?

   
 

I had to repost this highly informative and totally hysterical post I found on Google when I was looking for information how to make a Voodoo doll to make my uninvited houseguest , my motherinlaw , leave my house after seven months of torturing me and my family after seven months of pure hell. 

      Let me explain why I was researching  “Black Magic?”I ‘ve tried every every other way imaginable to ask her to leave from using the polite approach  “By the way when are you going back to your gorgeous three bedroom condo ,I heard you can get to the 2nd floor now that they finished fixing your elevator!!!!!!!!!!!!” That was about four months ago! Now I basically just say “Hey you bitch with the evil eye! “Get the fuck out of my house you took over.”

      For those of you apoalled by my lack of respect for my “evil” M.I.L please don’t judge me until you have the same nightmare situation as me. 

      Some of you might be saying leave the wheelchair bound grandmother alone she is old and lonely. WRONG!!!!! for there is no reason she should even be in a wheelchair in the first place millions of people get hip replacements like her and walk fine. She is just fucking lazy!

       Also she has long term nursing care and not only does my M.I.L live with me but I have had at least 15 different 24 hour aides that also have slept in my basement for the last seven months. Nothing like having creepy strangers who got a “aide” certificate from taking a three hour class at Walgreens, lol,so they can sit all day in my den , wipe my M.I.L’s ass and watch Dr .phil all day!!!!!!!!

      This is basically the short version why I was looking to alternative methods to get my Motherinlaw to leave my house.

      Enjoy reading the reposted article below. My husband and I were LMAO!!!!!! 

     I have not made or bought a voodoo doll yet but I probably will today!

     

 

Ask Voodoo Mama

The “Dear Abby” of Voodoo answers your questions about New Orleans Voodoo, Hoodoo, Conjure & Spiritualism

Tuesday, July 8, 2008

Is a voodoo doll like a person so you can like…hurt someone?

Interesting question, and one of the most commonly asked. Voodoo dolls in the New Orleans Voodoo tradition are meant to be used as focusing tools in ritual and meditation. However, because of the portrayal in popular media of Voodoo dolls are something to stick pins into in order to put a hex on someone, it has unfortunately become a common practice by those who are not true followers of Voodoo to use them in this way. Some people believe that you can affect a person in any way you want following the principles of sympathetic magic. Sympathetic magic suggests that you can influence a situation or person by imitating that which you desire. So, in theory, if you “harm” a Voodoo doll that was created to represent a specific person, then you will also harm the person that the doll represents.
There is a strong psychological component to sticking a pin in a Voodoo doll. It can actually be quite therapeutic for the one doing the sticking. If you are the intended target, just the suggestion of someone hexing you with a Voodoo doll is enough to create a self-fulfilling prophecy. In other words, if you believe things will go wrong, they will. Indeed, Voodoo magic is faith based, which means you have to believe in order for it to work. However, the idea that you can influence things to come simply by thinking about them has been challenged.
For example, several years ago, a team of psychologists at Harvard took “several dozen college-aged men and women, a fake Voodoo doll and an obnoxious man wearing a “Stupid people shouldn’t breed” t-shirt…Each test subject and the confederate were ushered into the lab and seated at a table in front of a handmade twig-and-cloth Voodoo doll…For background, the experimenter told the pair they would be partners in a study of “physical health symptoms that result from psychological factors…in the context of Haitian Voodoo'” (Morin, 2006). Both partners were given a scholarly article on Voodoo deaths to read.” The twist was that one of the participants was a confederate and instructed to act in an annoying fashion in the presence of the other participant. The other participant, coined the “witchdoctor” because of the role he was to play, did not know that the other participant was a confederate.
“The confederate dressed and behaved normally with half of the participants — and very badly with the other half. He arrived late wearing the obnoxious T-shirt, and muttered, “What’s the big deal?” when the experimenter said she was beginning to get worried. He tossed an extra copy of a consent form toward the trash can, but missed and left it on the floor” (Morin, 2006).
The confederate (victim) wrote his name on a piece of paper and pinned it to the voodoo doll. Both participants were then asked if they had any of 26 physical symptoms, including runny nose, sore muscles, and headache. The victim stated he had no symptoms, a statement overheard by the witchdoctor.
“The witch doctor was then left alone and instructed to think “concrete thoughts” about the victim. The researchers assumed that those participants exposed to the confederate in his offensive guise were more likely to harbor “evil thoughts” about their victim–an assumption that was later borne out when they asked them if they had thought badly about their ill-mannered partner. When the victim was brought back into the room, the witch doctor, again acting on instructions, stuck five pins into the Voodoo doll. The victim was again once again asked if he had any ailments. This time, he complained that he had a headache.
The witch doctor-participants were escorted from the room and completed a questionnaire asking whether they felt responsible for the victim’s headache, whether they believed they had actually caused them harm and whether they actually had caused the headache. “The participants led to generate evil thoughts about their victim were more likely than the neutral-thinking participants to believe that they caused his headache” the researchers reported.
In fact, test subjects who had thought bad things about the creepy victim were, on average, twice as likely to feel they were at least partially responsible for causing the headache than those who had neutral thoughts, they found. “These feelings of responsibility were apparent on each of the individual items in the composite,” they reported, indicating that evil-thinking participants were more likely to feel that they had caused the symptoms, that their practice of Voodoo caused the headache, and that they had tried to harm the victim” (Morin, 2006).
Check out this video. It is related to the present discussion and demonstrates the power of suggestion. Atheist, sceptic & mentalist Derren Brown challenges the beliefs of a New Age believer with the use of a Voodoo Doll.

Reference
Morin, R. (2006). Who do that Voodoo at Harvard? Pew Research Center Publications. Retrieved: http://pewresearch.org/pubs/66/who-do-that-voodoo-at-harvard

Denise Alvarado at 9:54 AM
1 comment:
DrkMIrageJune 4, 2015 at 6:38 AM

If you have a brand new voodoo doll, and left it at work, can it do any harm to who ever finds it? Even if no spell work has been done on it?
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Remembering David Bowie

When I heard about David Bowie death I was in shock. Unlike other rockstars Bowie led a very private life and like most people I didn’t even know he had cancer. 

      David Bowie was at the peak of his career in the late  1970’s and 1980’s . I was about 14 when I heard the song “Changes” one day after school at my friend’shouse. The song shocked many because the lyrics were interpreted that Bowie was either gay or transgender. The song was written about a very “taboo” subject at the time it was released. I remember my friend and shut her bedroom door so her mother couldn’t hear us playing “Changes” over and over again…….. I fell in love with David Bowie’s music that day so long ago.

      Bowie was a true original. He didn’t care if he was labeled “weird” or controversial. He was a true artist and talented writer. His songs have some of the powerful and beautiful lyrics about his view on life and love. So many of his song lyrics have become very popular quotes. Below are some of my personal favorite David Bowie lyrics that touched my life forever.

   I
   
      

    
    
    And my all time favorite lyrics from the song “Heroes”, in photo below, because it is a profoundly beautiful statement how he felt about love and relationships. 

  We lost a true Rock Icon the day David Bowie passed away , but he left us his musical  legacy that will be listened to for generations. 

  
 

I Was Born On Election Day

My fairytale began was I was born on November 5 which that year landed on the first Tuesday of November which was also Election Day. My poor mom was in labor without any meds for 14 long hours. At one point my grandfather who was so upset at hearing his daughter’s labor screams echoing through the entire hospital floor, grabbed my dad and yelled “What did you do to my daughter!” LOL!!!!!

    At 5:30 I finally was born and my mother “The Queen,” who was so exhausted took one look at her newborn princess, and then  banished me to the hospital nursery! 

         

m
            Even my dad was a little mad I was born on Election Day because he didn’t even get to a chance to vote. Did it really matter? he was the “King” afterall! 

       

 

Princess Spirit Week

  

I never knew what “spirit week” was before I moved to the south shore of Long Island but I soon found out when my older daughter entered high school. Last week my older daughter who is a senior taught her freshman sister how to rock Spirit Week. 

 Monday was the first day of Spirit Week and the theme was  “Pajama Day.” My daughter dressed up in a hooded “Care Bear” onesie. A few of her friends had the same idea. LOL!

 
Tuesday was renamed  “Tiki Tuesday.”  Everyone wore tropical type clothes that day. My daughter and her best friend dressed exactly the same. This is what she posted on Instagram. 
 
 On Wednesday the theme was “I Love the USA.” So as you could imagine everyone showed up wearing red white and blue outfits to show their patriotism. This is what my daughter wore and posted on Instagram. My daughter Nikki is the one in the red tutu!

  
 

 Thursday was “Costume Day” of course my daughter and her friends decided to dress up as Disney Princesses! My daughter was Sleeping Beauty ! No shock there because my daughter loves to sleep and take long naps after school .  

 
Okay not everyone wanted to be a princess as you can see in the photo above. 

 Friday was “homecoming Day” and the entire School dressed up wearing green “Cougar” teeshirts  which is their school mascot . 

 
Later that night I watched the “Cougars” football team win their homecoming game against a rival team. The homecoming King and Queen were crowned and the Cheerleaders didn’t stop cheering all night. 

 Every high school should have “Spirit Week.” Showing pride for your school is a beautiful thing!

Summer On Long Island’s South Shore

        One of the reasons I moved to the town of Merrick on the South Shore of Long Island because my first true love grew up here and I remember visiting him when he lived with his parents and was impressed that his whole block had a unobstructed view of the bay leading into the Atlantic Ocean. Most of these homes had their own docks where their luxurious yachts and expensive fast motorboats were anchored and ready to go . 

        I never realized the town I picked to move to on the south shore is a five minute car ride to Jones Beach. So I am spoiled because I never have to deal with beach traffic !  

       

   

      Most people on the South Shore who don’t live on waterfront property belong to various beach clubs which offer cabanas and restaurants. However, there are long waiting lists to   become a member of these limited space beach clubs. 

     The next best thing is having a jetski where a 14 year old can take a short course and get a license to legally drive one without a parent. My daughter has a few friends that just got new jetskis that cost approx 3000  dollars each when they graduated Middle School!  My daughter has been jetskiing all summer on her best friends hot pink jetski that seats three riders. I have been a little nervous thinking about my baby 14 year old going approx 70MPH in the bay that leads into the Atlantic Ocean.  I guess that is normal. 

   Since I lived most of my life on the North Shore where people have pools in their backyards,belong to country clubs, and going on a huge cruise ship was my idea of “boating” , moving to the South Shore was quite a change for me. 

      I however, opted to buy a house across the street from the bay and I am one of the few houses to have a huge built-in pool in my backyard. I guess I will always be a North Shore Princess!  

       Yes, this is my favorite float currently in my pool! 

The Princess Who Drank Too Much

  My older sister has had a long history with alcholism. I tried to help her with her problem but I simply couldn’t get through to her. She denied her problem and I continued in my late teens driving her to several bars the night after a major binge because she was so drunk the night before she didn’t remember where she left her car. At least she somehow got home safely and didn’t get behind the wheel. 

 
     It was only a matter of time before her luck would run out and it did.

      I owned a clothing boutigue in Roslyn and it grossed over a million dollars in sales the first year I opened the store at the young age of 23. Since my store was so successful my older sister left her teaching job and joined my staff. I was against the whole idea but had no choice since my mom was the president of my corporation. 

     It started out fine for the first few weeks. Then I noticed my sister was slurring her words when she spoke to customers every now and then.  The problem esculated and my manager Jody who worked with my sister on my days off and she told me that my sister was getting too out of control and the customers were starting to notice.

      One rainy night jody offered to drive my sister home because she was extemely drunk and could barely walk. Of course my sister told her she was fine and to mind her own business. 

       On the 2 mile ride to our house her car skidded and she hit a telephone pole. Me being newly married got the call from my frantic parents who told me to meet them at the hospital. The first things I saw when I found my sister’s room was that she had a bloody lip and to my horror was hancuffed to the hospital bed. My sister motioned me to come to her and whispered to me to take her handbag out of the room. 

    As I passed my father who was crying to the police officers who happened to know my family because our house alarm that was connected to the police station was always going off. He was begging them not to take her to jail that night after the plastic surgeon treated her lip. 

     My mom most of noticed how I was trying to pass the police holding my sister’s large handbag and she quickly joined me when I managed to sneak it out of the room. She followed me to the ladies room and we found in her bag a half full bottle of vodka which we opened and poured the rest down the drain. Then we saw a large trash can and tried to bury the huge bottle under hundreds of paper towels we pulled from the dispenser. 

      I felt like I was aiding a felon but family love was always unconditional in my life and me and my mom just had to take care of my sister even if meant hiding the evidence. 

       My father managed to save my sister from going to jail that night and took her home .  She had to appear in court a few days later and since it was her first offense they pleaded her case down to driving while impaired.

         I on the otherhand was so traumatized by the experience from that night on if I have more than obe drink I will not get behind the wheel. 

    Unfortunately my sister didn’t learn from that night and got 2 more DWI’s s and even lost her teaching license. 

     Do not drink and drive!!!!!!!!!! 
 

       

Sexual Abuse Is Not A FairyTale 

When I was in my teens I made my first gynocologist appointment because I had a serious boyfriend and wanted to go on the pill. Since I came from a strict family I was too afraid to tell my mother or ask her advice on what local doctor I should see. I was young and scared so I decided I wanted to see a female doctor and found one online. I told nobody about my appointment and went to this doctor myself. She seemed friendly and knew right away by my nervous composure I had never had a internal vaginal exam. I remember she tried to tell me the exam was “No big deal, ” with a smile. I remember putting my legs in the stirrups and feeling very uncomfortable. She inserted her finger and then some kind of metal object into my vagina. It felt extremely painful and even though it was my first vaginal exam my I thought to myself that something about this exam was just not right. After what seemed like forever the exam was finally over. The doctor had this weird look on her face as she told me to get dressed. When I got off the table and stood up I doubled over in extreme pain. I thought to myself the vaginal pain was probably normal since it was my first exam. I drove home with my prescription for the pill and couldn’t stop my gut instict telling me I was sexually violated. A few weeks later I was having lunch with a friend of mine who told me over lunch about her recent visit to her gynocologist. Her story was almost exactly identical to my experience. I then asked her the name of her doctor and was sick to my stomach when I found out she saw the same female gynocologist I saw. My friend and I were both sexually abused by the same woman. We went together and filed police reports and we were told that they would look into the matter but informed us most likely nothing could be done about the compliants because we had no physical evidence she had sexually violated us. A few weeks passed and my friend told me that her father, who happened to be a cardiologist, looked into the matter after she decided to tell him about the still very traumatic experience. He found out at least twenty other young women also filed reports with local police that they were sexually violated by this doctor. We all had one thing he noticed in common, it was all our first experience being vaginally examed, and that was very disturbing the fact just how many others like ourselves were also victims of a sexual crime and never knew it! He then filed a formal complaint the state medical board. After a formal long investigation, the woman gynocologist who sexually abused so many young women had her medical license revoked. Over twenty years later I told my 17 year old daughter, who I suspected is sexually active, that when she is ready to see a gynocologist for the first time I would make all the arrangements and go with her. She smiled and replied “Of couse I will mommy I tell you everything.” The point I am trying to make is maybe my still sexually traumatic experience could have been avoided if I had the type of mother I could have confided in about my sexual issues. If you have daughters my advice is tell them never to be afraid to confide in you about anything. I can’t change what happened to me but I can make sure my two teenage daughters never have to go through what I did.
  

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