Today Is Rare Disease Day  2016 ….Daddy I Wish……

Daddy I Wish….originally posted on my blog You Are Already Beautiful Parry  Romberg Syndrome and Me My story by Cheryl Rick Klein 

I am sharing this very personal story to support #rarediseaseday and #NORD 

If you know someone suffering from a rare disease please reblog and share this post originally written in 2010 to #raiseawareness , #educate and #support others living with a #RareDisease 

  

It has beem 16 years since you left and yes daddy I am still fighting to survive and won’t give up. 
  

Dedicated with love to MANNY RICK my dad who died May 23, 2000

My father was the first to notice that something was very wrong with my face when a small cut by my chin didn’t heal. He wasted no time and took me to every medical expert to find out was was wrong.

He held my hand and told me that I was still beautiful and told me to remain strong. He told me he would never give up to make me well again.

He showed me what true beauty is. You won’t find it in any mirror.
My dad lost both his legs to complications having diabetes.

I told him what he told me so many years ago.

Be strong, you are a beautiful person.

And he was………

It was the day of my little sister’s wedding. I went over to my parent’s house

to get ready for the big event.

Suddenly, my mother, and my two sisters were gathering their gowns and were heading to the door. ” Where are you going ? I asked.”

We have to get to the temple early we are having our makeup done professionally. They didn’t make a appointment for me.

My face said it all. My dad who was watching the situation remarked “I told you it wasn’t right to not include Cheryl.”

I just stood speechless as they pushed past me and headed out the door.

I ran upstairs to my old room and cried. I didn’t understand why I was not included. I lost half my face to Parry romberg Syndrome and it took years of cosmetic procedures to erase the damage on the outside, however in that moment I knew nothing could erase the emotional scars I tried to hide from the world. 

Could my own family be so shallow and actually be jealous I became too pretty???

My father called me to come downstairs.

He had tears in his eyes when he saw me. He opened his arms and hugged me tight. We cried together in silence. 

Then he said the most beautiful words to me I will never forget.

” You don’t need a make-up artist you are so beautiful just the way you are.”

I loved my dad more than anyone in the world. He saw the pain I hid in a smile.

My father also was fighting for his life after he was diagnosed in his late 50’s with Diabetes.

Diabetes is also a auto-immune illness that ravaged my father’s body and eventually took both his legs. 

I told him the same words he told me years ago. “You will always be beautiful to me daddy.” I hugged him tight and he cried like a baby in my arms. 
Parry Romberg Syndrome became a official rare disease in 2001.

Sadly my dad never knew I was finally diagnosed, he died just one year before.
   
  

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Fairytale Dragons

  
This works the same in “real” life doesn’t it??????????

You need to be strong, very strong to beat your own personal “dragons” whatever or whoever they are.  

Sometimes I just give up because I don’t believe my own fairytale has a happily ever after.

The last few months a very evil “dragon” has beaten me and my family down. Without my consent my husband moved my 78yr old mother in law into my house. She and I have never gotten along. The stress level has been so bad since the dragon moved in that three months after she invaded my home my husband had a sudden heart attack at 53 years old. I believe “karma” had something to do with this . I get chest pains everyday and worry I am next. “Somebody is gonna die if this “dragon” doesn’t leave.”I tell this to my husband everyday. He tells me then to  leave because he is afraid of his mother the dragon. 

After knowing my husband 25 years he picks the dragon over me. 

I am angry , very very angry. 

I have been battleing the dragon my heartless fire breathing bitch of a mother in law for now 8 months. 

Friday night “You are killing me.” … no response . I say much louder “Get the fuck out of my house!!!!!!” 

She and her 24 hour aid that also lives here look at me like I am crazy….

My husband tells his mom “She is off her meds.” 

What meds ????? I may be depressed, but I am not psychotic . I want to scream but stay silent. 

I creep upstairs to my new “bedroom” which used to be the living room. It is  the only place I have any privacy. The dragon is confined to a wheelchair and can’t get up the stairs. I am alone but I feel safe. 

My  18 year old daughter is horrified with the abuse I have been put through. She had been withdrawn because she desperately wants to help her mother. She also wants the dragon to leave. She yells at her father that he is destroying me and she can’t handle seeing me in such pain. 

My sister called today and told me bluntly,”You have to leave your son of a bitch husband .” I laughed silently “My husband is a son of a dragon bitch.” Lol. 

You have to find the strengh to get your life back. “You have your whole  family behind you to help , you are not alone.”

I don’t care anymore about my husband or the dragon. They are monsters for what they have done to me.

I will unlock my own dungeon and escape this very scary “fairy tale.” 

This won’t be easy and will take time but I will find my “happily ever after.” Without  a sword I will beat the dragons.    

    These fire breathing dragons will be very angry when I leave my dream house  that I loved and and brought up my two daughters in for the past ten years. 

To my dragon mother in law ….. Burn baby burn…….. along with your bastard son. 
  
       

And that’s me in the photo above. I walked through the flames and exited my personal hell . I will never look back. 

Is A Voodoo Doll Like A Person So You Can ….. Hurt Somebody?

   
 

I had to repost this highly informative and totally hysterical post I found on Google when I was looking for information how to make a Voodoo doll to make my uninvited houseguest , my motherinlaw , leave my house after seven months of torturing me and my family after seven months of pure hell. 

      Let me explain why I was researching  “Black Magic?”I ‘ve tried every every other way imaginable to ask her to leave from using the polite approach  “By the way when are you going back to your gorgeous three bedroom condo ,I heard you can get to the 2nd floor now that they finished fixing your elevator!!!!!!!!!!!!” That was about four months ago! Now I basically just say “Hey you bitch with the evil eye! “Get the fuck out of my house you took over.”

      For those of you apoalled by my lack of respect for my “evil” M.I.L please don’t judge me until you have the same nightmare situation as me. 

      Some of you might be saying leave the wheelchair bound grandmother alone she is old and lonely. WRONG!!!!! for there is no reason she should even be in a wheelchair in the first place millions of people get hip replacements like her and walk fine. She is just fucking lazy!

       Also she has long term nursing care and not only does my M.I.L live with me but I have had at least 15 different 24 hour aides that also have slept in my basement for the last seven months. Nothing like having creepy strangers who got a “aide” certificate from taking a three hour class at Walgreens, lol,so they can sit all day in my den , wipe my M.I.L’s ass and watch Dr .phil all day!!!!!!!!

      This is basically the short version why I was looking to alternative methods to get my Motherinlaw to leave my house.

      Enjoy reading the reposted article below. My husband and I were LMAO!!!!!! 

     I have not made or bought a voodoo doll yet but I probably will today!

     

 

Ask Voodoo Mama

The “Dear Abby” of Voodoo answers your questions about New Orleans Voodoo, Hoodoo, Conjure & Spiritualism

Tuesday, July 8, 2008

Is a voodoo doll like a person so you can like…hurt someone?

Interesting question, and one of the most commonly asked. Voodoo dolls in the New Orleans Voodoo tradition are meant to be used as focusing tools in ritual and meditation. However, because of the portrayal in popular media of Voodoo dolls are something to stick pins into in order to put a hex on someone, it has unfortunately become a common practice by those who are not true followers of Voodoo to use them in this way. Some people believe that you can affect a person in any way you want following the principles of sympathetic magic. Sympathetic magic suggests that you can influence a situation or person by imitating that which you desire. So, in theory, if you “harm” a Voodoo doll that was created to represent a specific person, then you will also harm the person that the doll represents.
There is a strong psychological component to sticking a pin in a Voodoo doll. It can actually be quite therapeutic for the one doing the sticking. If you are the intended target, just the suggestion of someone hexing you with a Voodoo doll is enough to create a self-fulfilling prophecy. In other words, if you believe things will go wrong, they will. Indeed, Voodoo magic is faith based, which means you have to believe in order for it to work. However, the idea that you can influence things to come simply by thinking about them has been challenged.
For example, several years ago, a team of psychologists at Harvard took “several dozen college-aged men and women, a fake Voodoo doll and an obnoxious man wearing a “Stupid people shouldn’t breed” t-shirt…Each test subject and the confederate were ushered into the lab and seated at a table in front of a handmade twig-and-cloth Voodoo doll…For background, the experimenter told the pair they would be partners in a study of “physical health symptoms that result from psychological factors…in the context of Haitian Voodoo'” (Morin, 2006). Both partners were given a scholarly article on Voodoo deaths to read.” The twist was that one of the participants was a confederate and instructed to act in an annoying fashion in the presence of the other participant. The other participant, coined the “witchdoctor” because of the role he was to play, did not know that the other participant was a confederate.
“The confederate dressed and behaved normally with half of the participants — and very badly with the other half. He arrived late wearing the obnoxious T-shirt, and muttered, “What’s the big deal?” when the experimenter said she was beginning to get worried. He tossed an extra copy of a consent form toward the trash can, but missed and left it on the floor” (Morin, 2006).
The confederate (victim) wrote his name on a piece of paper and pinned it to the voodoo doll. Both participants were then asked if they had any of 26 physical symptoms, including runny nose, sore muscles, and headache. The victim stated he had no symptoms, a statement overheard by the witchdoctor.
“The witch doctor was then left alone and instructed to think “concrete thoughts” about the victim. The researchers assumed that those participants exposed to the confederate in his offensive guise were more likely to harbor “evil thoughts” about their victim–an assumption that was later borne out when they asked them if they had thought badly about their ill-mannered partner. When the victim was brought back into the room, the witch doctor, again acting on instructions, stuck five pins into the Voodoo doll. The victim was again once again asked if he had any ailments. This time, he complained that he had a headache.
The witch doctor-participants were escorted from the room and completed a questionnaire asking whether they felt responsible for the victim’s headache, whether they believed they had actually caused them harm and whether they actually had caused the headache. “The participants led to generate evil thoughts about their victim were more likely than the neutral-thinking participants to believe that they caused his headache” the researchers reported.
In fact, test subjects who had thought bad things about the creepy victim were, on average, twice as likely to feel they were at least partially responsible for causing the headache than those who had neutral thoughts, they found. “These feelings of responsibility were apparent on each of the individual items in the composite,” they reported, indicating that evil-thinking participants were more likely to feel that they had caused the symptoms, that their practice of Voodoo caused the headache, and that they had tried to harm the victim” (Morin, 2006).
Check out this video. It is related to the present discussion and demonstrates the power of suggestion. Atheist, sceptic & mentalist Derren Brown challenges the beliefs of a New Age believer with the use of a Voodoo Doll.

Reference
Morin, R. (2006). Who do that Voodoo at Harvard? Pew Research Center Publications. Retrieved: http://pewresearch.org/pubs/66/who-do-that-voodoo-at-harvard

Denise Alvarado at 9:54 AM
1 comment:
DrkMIrageJune 4, 2015 at 6:38 AM

If you have a brand new voodoo doll, and left it at work, can it do any harm to who ever finds it? Even if no spell work has been done on it?
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The Fur POM POM Mom

The Fur Pom Pom Mom 
       

        
This cute furry Pom Pom keychain is #trending as the must have #accessory of 2016. They come in every color and price range depending on the brand and if the fur is real or faux. My daughter bought me a hot pink fox fur Pom from Saks for Hanukah. She told me a Pom keychain makes it is so easy to find your keys in a large handbag. Sounds like a item I really needed because I have really big handbags. 
    I thought about Adrian, a former #RHOB , who always said , “The bigger the bag the smaller the tush.” 

    I totally fell in love with Adrian’s  #fashion logic! From that moment on I only have bought really large handbags! 

      I attached my keys to the hot pink Pom Pom and placed it in my handbag. That night I needed to get my asthma spray out of my bag and so I got out of bed in the dark half asleep and reached into my huge handbag and felt something furry and screamed! “There is a huge mouse in my bag.” I got my hand out of that bag so quickly and threw the bag across the bedroom. The bag landed upside down and the contents of my huge bag fell out and were now scattered all over my bedroom floor.

     The first thing I saw was that hot pink furry Pom that practically glowed in the dark. I found my “mouse.” Yes, I just had a very embarrassing blonde moment !!!!!! #LOL !!!!!!  

      Maybe I should get a furry Pom Pom hat ? Hmmmmmm
   

 
#BlogHer , #Fashionista , #FashionBlogger , #trendy , #Style , #RePost , #MustHave , #Wordpress , #fur, #SocialMedia , #Blogging, #lol #pompom , #accessories ,#TooFunny , #HandBags , #TrueStory ,#StyleWatch , #twitter #ReBlog 
POM POM faux fur keychain 18$ available at Vanilla Sky, Merrick NY

Remembering David Bowie

When I heard about David Bowie death I was in shock. Unlike other rockstars Bowie led a very private life and like most people I didn’t even know he had cancer. 

      David Bowie was at the peak of his career in the late  1970’s and 1980’s . I was about 14 when I heard the song “Changes” one day after school at my friend’shouse. The song shocked many because the lyrics were interpreted that Bowie was either gay or transgender. The song was written about a very “taboo” subject at the time it was released. I remember my friend and shut her bedroom door so her mother couldn’t hear us playing “Changes” over and over again…….. I fell in love with David Bowie’s music that day so long ago.

      Bowie was a true original. He didn’t care if he was labeled “weird” or controversial. He was a true artist and talented writer. His songs have some of the powerful and beautiful lyrics about his view on life and love. So many of his song lyrics have become very popular quotes. Below are some of my personal favorite David Bowie lyrics that touched my life forever.

   I
   
      

    
    
    And my all time favorite lyrics from the song “Heroes”, in photo below, because it is a profoundly beautiful statement how he felt about love and relationships. 

  We lost a true Rock Icon the day David Bowie passed away , but he left us his musical  legacy that will be listened to for generations. 

  
 

I Was Born On Election Day

My fairytale began was I was born on November 5 which that year landed on the first Tuesday of November which was also Election Day. My poor mom was in labor without any meds for 14 long hours. At one point my grandfather who was so upset at hearing his daughter’s labor screams echoing through the entire hospital floor, grabbed my dad and yelled “What did you do to my daughter!” LOL!!!!!

    At 5:30 I finally was born and my mother “The Queen,” who was so exhausted took one look at her newborn princess, and then  banished me to the hospital nursery! 

         

m
            Even my dad was a little mad I was born on Election Day because he didn’t even get to a chance to vote. Did it really matter? he was the “King” afterall! 

       

 

Princess Spirit Week

  

I never knew what “spirit week” was before I moved to the south shore of Long Island but I soon found out when my older daughter entered high school. Last week my older daughter who is a senior taught her freshman sister how to rock Spirit Week. 

 Monday was the first day of Spirit Week and the theme was  “Pajama Day.” My daughter dressed up in a hooded “Care Bear” onesie. A few of her friends had the same idea. LOL!

 
Tuesday was renamed  “Tiki Tuesday.”  Everyone wore tropical type clothes that day. My daughter and her best friend dressed exactly the same. This is what she posted on Instagram. 
 
 On Wednesday the theme was “I Love the USA.” So as you could imagine everyone showed up wearing red white and blue outfits to show their patriotism. This is what my daughter wore and posted on Instagram. My daughter Nikki is the one in the red tutu!

  
 

 Thursday was “Costume Day” of course my daughter and her friends decided to dress up as Disney Princesses! My daughter was Sleeping Beauty ! No shock there because my daughter loves to sleep and take long naps after school .  

 
Okay not everyone wanted to be a princess as you can see in the photo above. 

 Friday was “homecoming Day” and the entire School dressed up wearing green “Cougar” teeshirts  which is their school mascot . 

 
Later that night I watched the “Cougars” football team win their homecoming game against a rival team. The homecoming King and Queen were crowned and the Cheerleaders didn’t stop cheering all night. 

 Every high school should have “Spirit Week.” Showing pride for your school is a beautiful thing!

I Live Minutes Away From The Amityville Horror House!

  
  Yes this is the actual infamous Amityville Horror house located on 112 Ocean Drive where six members of the DeFeo family were shot to death execution style including both parents and four of their sleeping children on November 13, 1974 by 23 year old by the oldest son Ronnie DeFeo. 

      In 1977 the Lutz family bought the Amityville waterfront property on Ocean Drive and were quoted as saying they “could handle living in the house.” Many speculated  the Lutz’s  bought the Amityville house to capitalize on the tradgic deaths of the DeFeo Family. The Lutz’s claimed to experience demonic and supernatural events including foul odors and seeing “green slime ”   were considered hoaxes by most local residents and paranormal experts. The Lutz’s moved out of the Amityville house a few months later. They eventually had a book deal and six movies were made based on the Amityville Horror house. 

        When I moved to the south shore I never ventured to Ocean Drive to check out the Amityville Horror House. I really had no interest to visit the site. One night my husband took me to a italian restaurant called “Mama’s” which we heard had really good italian food. It was located in Amityville. After a delicious dinner and the best baked clams I ever had in my life my husband made on the way home made a turn onto Ocean Drive. I was like no way are you taking me to the Amityville Horror House! He just laughed at me. Since I am a horror and paranormal junkie I was a little intriqued. It took it a little while to find the house since the new owners changed the actual house number address for privacy reasons but once I spotted the only house on Ocean Drive which even in the dark I could see the famous  boathouse I knew I we found the house. 

     There were two cars in the driveway so apparently the house was occupied I noticed. Since I am intuitive, my husband asked me if I wanted to get out of the car and walk around. I declined his idea right away. The well groomed house with protective a black steel fence surrounding the front of the house was the new owner’s way of saying “No Tresspassing”  

     To be honest I really wanted to go home. I saw the the Amityville Horror House and it looked like every other well groomed house on Ocean Drive. 

      A few weeks later I was getting my hair colored and my colorist who lived in Amityville told me that that all locals knew  the true story of why Ronnie DeFeo killed his entire family. She told me he was a crytal meth addict. “That is why he heard the voices telling him to kill his family.” 

      I felt so sad for the DeFeo family who died so senselessly . The next day I went back to the Amityville House and left six red roses on the front lawn. One for each of the six DeFeo family members who were brutally murdered . This wasn’t a fairytale. This was real. 

  I never will return to that house again……..

  

    

My Princess Daughter Goes To Work

 

   A few months ago my 17 year old daughter Nikki came home and said “Guess what happened today?” Before I even had a chance to reply she burst out “I got a job mommy!”
     She totally caught me off guard considering the fact I had no idea she was even looking for one. She went on to tell me that she was in her favorite local boutique, Reign,where she frequently shopped and summoned up the courage to ask the owner if they were hiring. 

     The owner smiled and  asked her some basic questions about what grade she was in and her age. When my daughter informed her she was 17 and finishing up her Junior year in high school.  The owner then told her that she normally only hires college age girls that have some prior retail experience. Instead of taking her comments as a rejection, my daughter didn’t get intimidated and told the the owner that she loves fashion and was a quick learner. The owner was suddenly listening now! Nikki added that she lived minutes away from the store and had her own car to get there. Impressed by her attitude and determination looked Nikki up and down and commented “You certainly have the right look and style to work here.” Then she hired Nikki on the spot. 

     It wasn’t a easy transition for Nikki who suddenly had give up her after school naps and couldn’t hang out with her friends as often especially since she worked almost every weekend. She made some personal sacrifices but when she started to get weekly paychecks she had a new found sense of independence and I watched my little girl transform into a beautiful responsible young woman. 

    On my birthday she bought me a beautiful pair of Tori Burch sandels. I was so touched because I knew how many hours she worked to pay for them. I told her she shouldn’t have spent so much of her own money on a gift fot me but she dissagreed and said “Mommy, it’s the first time I bought you a present you deserve because I love you so much!” Of course I cried. 

     Nikki continued to work and she would come home with stories about customers who she helped find the “perfect” outfit to wear for a special ocassion or a college student who needed a whole new wardrobe. Nikki told me how she so good she felt  when she saw a customer smiling as they looked at themself  in the mirror in a outfit she helped them pick out. 

     That was about six months ago and my daughter still works there. It took very little time to prove to owner she made the right decision. Only about a month after she started working , the owner told her that although she was the youngest employee she ever hired and proved to be a valuable asset to her very busy boutique. She even was named “salesperson of the month” that affirmed  Nikki was doing a excellent job at Reign. 

      I also shop in this trendy store where I now even get a 20 percent discount! A perk of being Nikki’s mom. Lol. One day when I was in the store the owner pulled me aside and told me that Nikki was loved by her customers and the store staff. “I am adopting Nikki,” she joked.  “You can have her until she leaves in a year for college.” I jokingly repied.Then she said on a more seriously note “You should be so proud of yourself for raising a daughter that is so responsible, confident and respectful of others.” She added “These things can’t be taught at school.”

       As I left the store that day I thought to myself although me and husband certainly weren’t perfect parents we did a pretty good job raising our Nikki! 

       I am one proud mommy!

 

   Nikki and Me
    

Not Every Witch Lives In Salem

There are witches all around us. Most are good and have only the best intentions. I should know because my mother always claimed she was a witch! Like most witch’s she was a strong woman who fiercely loved and protected my family at any cost. My mother taught me while growing up that being a “good” person was more important than any religion. She warned me that although she felt most people were “good” I would come in contact with a few people in my life who were truly evil.  She seemed to have this 6th sense to spot a dark soul or what she referred to as having the “evil eye.”  

My mother didn’t have a book of spells or cook up a special brew to get rid of people who crossed her path with the intention of causing her and my family halm. All I know is she somehow fought back and they never crossed her path again. 

 Witches are misunderstood. My mom didn’t fly around on a broomstick or wear a pointy hat. However, she loved black cats and of course we had one that always sat on my mother’s lap. LOL! 

 My mother only wished the best for her friends and her family. She was a role model and such a positive inspiration in my life . Even though My mother called herself a “witch” to me she was angel on earth . 

   
 
 

   Happy Halloween!!!!!!