Tag: #stillrise

This Princess has Scars 


I have scars some have been the result of a terrible rare disease that nearly destroyed the right side of my face. I was only 11 years old when this disease without a name suddenly appeared. I was seen by so many top doctors and specialists in NYC and nobody could diagnose what was happening to me.

Running out of options my desperate parents were recommended to see one of most respected innovative Dermotologists name Norman Oreintriech . His client list included Elizabeth Taylor, Andy Wahol , Cary Grant and so many others.


Dr Oreintriech was intimadating when my mother took me to see him for a consultation when I was twelve. He took a look at my face and told my mom “I have    never took on such a young patient, but, I am willing to try to fix the damage done to her face because even though she has terrible scars I can see how beautiful she was and will we be again.” Then he added “Honestly, if I saw no potential and if she was below average looking, I would tell you to not waste your money and your time and just take her home.” I still remember how those words changed my life and how it to be given “HOPE.”

       Dr Norman Orientriech gave me my life back. He slowly filled up face with small monthly amounts of silicone every month. I waited for hours sometimes in his waiting room filled with well dressed very attractive NYC socialite types of women. When I finally saw the doctor he would take photos of my face and inject over 100 or so painful silicone injections into my right upper lip and lower cheek and chin area until the small vial containing the carefully measured monthly amount of silicone was empty.The whole routine took about 5 minutes.  He would barely say anything to me or my mom except “See you next month.”

I teenage years were taken away from me socially. I still had tons of girlfriends who were “True Friends” and never left my side while I was disfiqured. They treated me exactly the same although there lives were all about going to parties and having boyfriends. I wasn’t jealous, I listened to their stories and was happy for them. If somebody in school made fun of me or called me things like “Scarface” and one of my many popular friends were present they would defend me and verbally attack  these few immature mostly male bastards.

Over 100,000 dollars and over a 100 or so monthly trips to Dr. Norman Orientreich , my face was finally almost scar free. The scars I endured battleing this illness emotionally would still haunt me till this day.

I was 22 years old, engaged and well, okay quite beautiful the last time I saw Dr. Norman Orientriech. I was all grown up and Dr. Orientriech looked younger every time I saw him over the past 10 years. He was now developing skin care products for Nuetrogena and Clinique . That day we both decided that I didn’t need any more injections. His job was done and the promise he made my mom and me over 10 years prior came true.

Mr. Orientriech wished me well and hugged me tight and like always he was in a rush to see his next patient but I could see he had tears in his eyes.

That was over 30 years ago.

On this Father’s Day I want to dedicate this post to Dr. Orientriech a dedicated dermotologist who invented so many skin products and procedures years before other top doctors in his field. He is also a loving father. His son David and daughter Catherine are both Dermotologists have their practice in the same NYC office.

I saw David Orientriech a few weeks ago for some touch-up work on my face. He told me that his dad was now retired and 90 years old.

At the end of visit David Orientreich looked at me closely and said to me “I finally know who the girl in the photo still sitting on his father’s desk for so many years is!”

“It’s you!” The girl in the photo was me indeed. What a honor!

Happy Fathers Day Dr. Norman Orientriech ❤️

 

 

Today Is Rare Disease Day  2016 ….Daddy I Wish……

Daddy I Wish….originally posted on my blog You Are Already Beautiful Parry  Romberg Syndrome and Me My story by Cheryl Rick Klein 

I am sharing this very personal story to support #rarediseaseday and #NORD 

If you know someone suffering from a rare disease please reblog and share this post originally written in 2010 to #raiseawareness , #educate and #support others living with a #RareDisease 

  

It has beem 16 years since you left and yes daddy I am still fighting to survive and won’t give up. 
  

Dedicated with love to MANNY RICK my dad who died May 23, 2000

My father was the first to notice that something was very wrong with my face when a small cut by my chin didn’t heal. He wasted no time and took me to every medical expert to find out was was wrong.

He held my hand and told me that I was still beautiful and told me to remain strong. He told me he would never give up to make me well again.

He showed me what true beauty is. You won’t find it in any mirror.
My dad lost both his legs to complications having diabetes.

I told him what he told me so many years ago.

Be strong, you are a beautiful person.

And he was………

It was the day of my little sister’s wedding. I went over to my parent’s house

to get ready for the big event.

Suddenly, my mother, and my two sisters were gathering their gowns and were heading to the door. ” Where are you going ? I asked.”

We have to get to the temple early we are having our makeup done professionally. They didn’t make a appointment for me.

My face said it all. My dad who was watching the situation remarked “I told you it wasn’t right to not include Cheryl.”

I just stood speechless as they pushed past me and headed out the door.

I ran upstairs to my old room and cried. I didn’t understand why I was not included. I lost half my face to Parry romberg Syndrome and it took years of cosmetic procedures to erase the damage on the outside, however in that moment I knew nothing could erase the emotional scars I tried to hide from the world. 

Could my own family be so shallow and actually be jealous I became too pretty???

My father called me to come downstairs.

He had tears in his eyes when he saw me. He opened his arms and hugged me tight. We cried together in silence. 

Then he said the most beautiful words to me I will never forget.

” You don’t need a make-up artist you are so beautiful just the way you are.”

I loved my dad more than anyone in the world. He saw the pain I hid in a smile.

My father also was fighting for his life after he was diagnosed in his late 50’s with Diabetes.

Diabetes is also a auto-immune illness that ravaged my father’s body and eventually took both his legs. 

I told him the same words he told me years ago. “You will always be beautiful to me daddy.” I hugged him tight and he cried like a baby in my arms. 
Parry Romberg Syndrome became a official rare disease in 2001.

Sadly my dad never knew I was finally diagnosed, he died just one year before.
   
  

Fairytale Dragons

  
This works the same in “real” life doesn’t it??????????

You need to be strong, very strong to beat your own personal “dragons” whatever or whoever they are.  

Sometimes I just give up because I don’t believe my own fairytale has a happily ever after.

The last few months a very evil “dragon” has beaten me and my family down. Without my consent my husband moved my 78yr old mother in law into my house. She and I have never gotten along. The stress level has been so bad since the dragon moved in that three months after she invaded my home my husband had a sudden heart attack at 53 years old. I believe “karma” had something to do with this . I get chest pains everyday and worry I am next. “Somebody is gonna die if this “dragon” doesn’t leave.”I tell this to my husband everyday. He tells me then to  leave because he is afraid of his mother the dragon. 

After knowing my husband 25 years he picks the dragon over me. 

I am angry , very very angry. 

I have been battleing the dragon my heartless fire breathing bitch of a mother in law for now 8 months. 

Friday night “You are killing me.” … no response . I say much louder “Get the fuck out of my house!!!!!!” 

She and her 24 hour aid that also lives here look at me like I am crazy….

My husband tells his mom “She is off her meds.” 

What meds ????? I may be depressed, but I am not psychotic . I want to scream but stay silent. 

I creep upstairs to my new “bedroom” which used to be the living room. It is  the only place I have any privacy. The dragon is confined to a wheelchair and can’t get up the stairs. I am alone but I feel safe. 

My  18 year old daughter is horrified with the abuse I have been put through. She had been withdrawn because she desperately wants to help her mother. She also wants the dragon to leave. She yells at her father that he is destroying me and she can’t handle seeing me in such pain. 

My sister called today and told me bluntly,”You have to leave your son of a bitch husband .” I laughed silently “My husband is a son of a dragon bitch.” Lol. 

You have to find the strengh to get your life back. “You have your whole  family behind you to help , you are not alone.”

I don’t care anymore about my husband or the dragon. They are monsters for what they have done to me.

I will unlock my own dungeon and escape this very scary “fairy tale.” 

This won’t be easy and will take time but I will find my “happily ever after.” Without  a sword I will beat the dragons.    

    These fire breathing dragons will be very angry when I leave my dream house  that I loved and and brought up my two daughters in for the past ten years. 

To my dragon mother in law ….. Burn baby burn…….. along with your bastard son. 
  
       

And that’s me in the photo above. I walked through the flames and exited my personal hell . I will never look back. 

Sexual Abuse Is Not A FairyTale 

When I was in my teens I made my first gynocologist appointment because I had a serious boyfriend and wanted to go on the pill. Since I came from a strict family I was too afraid to tell my mother or ask her advice on what local doctor I should see. I was young and scared so I decided I wanted to see a female doctor and found one online. I told nobody about my appointment and went to this doctor myself. She seemed friendly and knew right away by my nervous composure I had never had a internal vaginal exam. I remember she tried to tell me the exam was “No big deal, ” with a smile. I remember putting my legs in the stirrups and feeling very uncomfortable. She inserted her finger and then some kind of metal object into my vagina. It felt extremely painful and even though it was my first vaginal exam my I thought to myself that something about this exam was just not right. After what seemed like forever the exam was finally over. The doctor had this weird look on her face as she told me to get dressed. When I got off the table and stood up I doubled over in extreme pain. I thought to myself the vaginal pain was probably normal since it was my first exam. I drove home with my prescription for the pill and couldn’t stop my gut instict telling me I was sexually violated. A few weeks later I was having lunch with a friend of mine who told me over lunch about her recent visit to her gynocologist. Her story was almost exactly identical to my experience. I then asked her the name of her doctor and was sick to my stomach when I found out she saw the same female gynocologist I saw. My friend and I were both sexually abused by the same woman. We went together and filed police reports and we were told that they would look into the matter but informed us most likely nothing could be done about the compliants because we had no physical evidence she had sexually violated us. A few weeks passed and my friend told me that her father, who happened to be a cardiologist, looked into the matter after she decided to tell him about the still very traumatic experience. He found out at least twenty other young women also filed reports with local police that they were sexually violated by this doctor. We all had one thing he noticed in common, it was all our first experience being vaginally examed, and that was very disturbing the fact just how many others like ourselves were also victims of a sexual crime and never knew it! He then filed a formal complaint the state medical board. After a formal long investigation, the woman gynocologist who sexually abused so many young women had her medical license revoked. Over twenty years later I told my 17 year old daughter, who I suspected is sexually active, that when she is ready to see a gynocologist for the first time I would make all the arrangements and go with her. She smiled and replied “Of couse I will mommy I tell you everything.” The point I am trying to make is maybe my still sexually traumatic experience could have been avoided if I had the type of mother I could have confided in about my sexual issues. If you have daughters my advice is tell them never to be afraid to confide in you about anything. I can’t change what happened to me but I can make sure my two teenage daughters never have to go through what I did.
  

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